Lichen Sclerosus: I diagnosed myself

I was diagnosed by myself with Google at 56 after 5 gynecologists. Despite being a nurse I had never heard of any vulvar lichenoid diseases. I fused rapidly . It was relentless burning, stabbing ,needle like pain. In 3 months I lost one labia, 50% of other and had clitoral phimosis. The pain of clitoraldynia rendered me unable to function. I ended up losing a job I loved and going on disability. My life is forever altered. I eventually had lysis of adhesions .All activates of daily living are compromised. Depression is a struggle. The lack of education within the medical community does kill women. 60% OF vulvar cancer is undiagnosed lichen sclerosis.