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  • Home Page
    • The Vulva
  • Symptoms
  • Overview of Lichen Sclerosus
  • Lichen Sclerosus In Men & Penile cancer
  • Lichen Sclerosus in Children
  • Diagnosis
  • Treatments
    • Tips and partner support advice >
      • Vulval Cancer & Pagets Disease
  • Vulval Biopsy results explained
  • Vulval Lichen Planus/Erosive Lichen Planus
  • What can be expected after Vulva cancer treatment
    • HPV >
      • Checklists
  • Eve Appeal's Research Fund and training program for medical professionals
  • Links to Charities
  • 5 Gynaecological cancers
  • British Society for the study of Vulval Disease (BSSVD)
  • Guest Blogs
  • Articles on Lichen Sclerosus and Vulval Cancer
  • Borax And Lichen Sclerosus
  • Leaflets, posters and badges
  • Awareness Images & Video's
  • #Knowyourvulva Campaigns
  • Campaigns
  • Website links
  • Literature
  • Research opportunities

Guest Blogs

Living with Lymphedema by Deb

2/11/2019

19 Comments

 
Picture
Some cancers you can get rid of and, if you're lucky, block them out and live your life like you never had it. Vulva cancer is not one of these. Even the minimal surgery is disfiguring and if, like me, you have all your lymph nodes removed you are left with yet another reminder; lymphoedema. Mine starts in my lower abdomen and was down to my knees but had now spread to my lower legs. On good days walking feels like wading through treacle, on bad days putting one foot in front of the other just isn't an option..
The worst affected area of all is my genitals. The swelling and pressure is so painful I can't even sit properly. My mons is more like a mountain and out of my fat suit I pack a bulge that would make Beckham green with envy!
I haven't been to a lymphoedema clinic yet and don't have a compression garment or tights. There are several reasons for this;
I can't bear anyone to look at me or touch me and am having counselling to try and get me there as I really need help
The garment I was measured for by the district nurses is about 6 sizes too small.
My fat suit plays havoc with my umbilical hernia and causes excruciating pain in the form of colic so what the hell would a proper garment do to me?
I really feel for those ladies who suffer from primary lymphoedema but some of them really look down on those of us who have secondary. This makes you feel even worse about how your body looks and you just feel ostracised with nobody to turn to.
It's a horrible affliction, and when you beat cancer you still have a lifelong battle ahead of you with this bastard. The doctors play it down, make it sound insignificant and easily managed, in other words they know fuck all.
19 Comments
Tiffany
26/9/2024 02:06:36

I want to share my experience of getting rid of my herpes with no side effects, thanks to Dr. Ajayi. I was diagnosed with herpes 5 years ago and was taking medications, but I wasn't satisfied with the results. I started looking for possible cures and came across a comment about Dr. Ajayi and his herbal medicine. I contacted him, and he guided me through the process. He prepared the herbs, shipped them to me with instructions and dosage, and I took the medicine as prescribed. After a few days, I did a blood test twice, and the results came out negative. I was completely cured of herpes. I am so grateful to Dr. Ajayi for all he did. If you need help with herbal remedies, you can contact him via email at [email protected], call/WhatsApp him at +2348119071237, or visit his website https://ajayiherbalhome.weebly.com

Reply
Tiffany
26/9/2024 02:08:41

I want to share my experience of getting rid of my herpes with no side effects, thanks to Dr. Ajayi. I was diagnosed with herpes 5 years ago and was taking medications, but I wasn't satisfied with the results. I started looking for possible cures and came across a comment about Dr. Ajayi and his herbal medicine. I contacted him, and he guided me through the process. He prepared the herbs, shipped them to me with instructions and dosage, and I took the medicine as prescribed. After a few days, I did a blood test twice, and the results came out negative. I was completely cured of herpes. I am so grateful to Dr. Ajayi for all he did. If you need help with herbal remedies, you can contact him via email at [email protected], call/WhatsApp him at +2348119071237, or visit his website https://ajayiherbalhome.weebly.com.

Reply
Farah
17/10/2024 21:20:09

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Reply
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20/12/2024 10:17:12

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josh mavis
7/1/2025 14:55:54


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Reply
Johnson Dawn
16/1/2025 00:56:33

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Christine Davis
18/1/2025 08:18:49

2025 changed my life. I never believed I would be cured by a spell caster who specializes in herbal cure and magical spells. I am talking about the help Doctor Odunga gave to me. I have been cured of herpes HPV which has plagued me for over 2 years. I am very happy to tell others that if you want to be cured or get your ex back spells and get pregnant naturally, even financial blessing through lottery, there is only one place to be and that is with Dr Odunga Spell Temple. Am so happy that just 3 days after taking DR ODUNGA Herbal treatments my herpes was cured permanently. DR ODUNGA also have cure to #HIV #Diabetes #Lupus #Tinnitus #Fibroid #Cancer #Hepatitis B, #Syphilis #Infertility etc ... If you have this ailment or whatsoever you might be suffering from you should contact him at his EMAIL: [email protected] OR VIA Whats App +2348167159012

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ruth fraser
2/3/2025 21:51:35

I was diagnosed of herpes in 2018 and I tried all possible means to get cure but all to no avail until i saw a post in a health forum about a herbal doctor from Africa who prepare herbal medicine to cure all kind of diseases including herpes virus, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email [email protected] i bought the herpes herbal medicine and received it through UPS COURIER SERVICE within 4 days and used it as prescribed, i was cured permanently of herpes virus within 2 weeks of usage. Thanks to Dr Osalu herbal medicine,you can as well contact him via email [email protected] or his WhatApp number +2348078668950. website https://drosaluherbalhome.wixsite.com/drosaluherbshome    
He got a lot of information to help cure any type of disease.  

Reply
Julia Pierson
10/3/2025 14:18:00

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Lilian Jose
21/3/2025 17:08:50

I want to use this opportunity to testify of the marvelous work of Dr. Odunga and how he has helped me in curing my sickness and bringing happiness into my life. I can really vouch for Dr. Odunga in herbal treatment. I was suffering from Cervical Cancer and infected with HPV 16. I used to have unusual vaginal bleeding and painful urination. There was nothing I could do until a childhood friend introduced me to Dr. Odunga Remedies. I spoke with him and ordered his recommended medication which was delivered to me through DHL. Immediately I began using herbal medicine, and within a week I couldn't feel any pain. It took me 2 weeks to finish the medicine and afterwards I was completely cured. I highly recommend that you order your herbal medication through Chief Dr. Odunga. Contact his email [email protected] OR What'sApp/Call him at +2348167159012

He is 100% reliable to help you too.

Reply
Lilian Jose
21/3/2025 17:30:37

I want to use this opportunity to testify of the marvelous work of Dr. Odunga and how he has helped me in curing my sickness and bringing happiness into my life. I can really vouch for Dr. Odunga in herbal treatment. I was suffering from Cervical Cancer and infected with HPV 16. I used to have unusual vaginal bleeding and painful urination. There was nothing I could do until a childhood friend introduced me to Dr. Odunga Remedies. I spoke with him and ordered his recommended medication which was delivered to me through DHL. Immediately I began using herbal medicine, and within a week I couldn't feel any pain. It took me 2 weeks to finish the medicine and afterwards I was completely cured. I highly recommend that you order your herbal medication through Chief Dr. Odunga. Contact his email [email protected] OR What'sApp/Call him at +2348167159012

He is 100% reliable to help you too.

Reply
micheal pevet
23/3/2025 08:32:26

NATURAL WAY TO GET HERPES1&2 CURED. If you have been looking for ways to naturally get rid of the herpes simplex virus from your body completely, then you are welcome to read further. Let's face reality here, you have tried so many counter drugs and you are confused, weak and angry because nothing seems to work. Good News For you my friend.... Yes, I came with good news that will liberate you from the pains and stress of herpes outbreak, you will get total cure from this virus using Dr. MOSES BUBA Herbal Methodology. Who is Dr. MOSES BUBA? You may ask. Dr. MOSES BUBA is a herbalist and a naturalist. He researched and identified some herbs and established a unique methodology to healing the human body using Herbal medicine that was confidently entrenched in his over 30 years of experience. According to him, he has the cure for so many diseases/virus like GENITAL HERPES, HIV, DIABETES, CANCER, HPV, HSV1&2, GENITAL WART, SHINGLES, VAGINAL INFECTION and so many more. You can reach Dr MOSES BBUBA on his email: [email protected] / WhatsApp +2349060529305 . You can also contact him through his website: https://bubaherbalmiraclem.wixsite.com/website. Facebook page : https://www.facebook.com/profile.php?id=61559577240930 . I am using this medium to inform everyone how to get treated of herpes using Dr MOSES BUBA recommended Herbal methodology.

Reply
jefferson dinhnguyen
25/3/2025 08:56:33

I got cure from HPV within 2 weeks of applying the natural herbs from Dr Onokun the great herbal healer kindly contact him and get healed via http://onokunherbs.com or Facebook.com/naturaltreatmentcenter1

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Marcus
26/3/2025 00:27:34

Since I was a child, I've envisioned owning an electric truck, but I never imagined my dream would become a reality. Currently, I possess a Cybertruck from Tesla, a feat made possible by Lord Meduza, the spell caster who created a lottery spell that secured my MEGA MILLION winning ticket of $156,000,000 million dollars. Currently, my family and I are completely debt-free and we enjoy life like celebrities, haha. Allow Lord Meduza to revive your forgotten dreams in 48 hours, as this is the sole method to succeed in winning the lottery. His fortunate numbers are not anticipated but fated for greatness. His spells include various types, such as healing from illnesses or ailments, seeking employment, or attempting to rekindle a relationship with an ex. Simply get in touch with him via the below details and God Bless.
Email: [email protected]
Whats-App: +18079072687..

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Adam Joan
2/4/2025 13:02:07

it so amazing on everyone who contracted HPV to know about this 100% natural treatment which i also used to cure HPV out of my body. i'm free from this virus i found about the cure online from an ex hpv patient who also got rid of hpv with same natural treatment. everyone suffering from this virus should also inquire this cure. contact the traditional healer Dr Onokun. through his website: onokunherbs.com or Email: [email protected]

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Mike
3/4/2025 19:39:54

Using natural roots and herbs 🌿 supplements is the best and it’s safe Curing and eliminating HSV 1 & 2 so don’t lose hope, order your herbs from Dr.Ogudugu on YouTube channel today...contact his email [email protected] or contact him on WhatsApp +2348163026536

Reply
Emma
25/4/2025 10:16:36

My life was nearly unbearable due to a herpes virus infection. I experienced frequent and painful outbreaks on my penis, which were incredibly difficult to manage. The blisters and sores would often appear whenever I was feeling ill, making an already tough situation even worse. I became extremely frustrated and exhausted from the cycle of pain and discomfort. I tried various medications, including Valtrex and acyclovir, hoping they would alleviate my symptoms and possibly lead to a cure. However, my doctor informed me that there was no permanent cure for the virus, which left me feeling hopeless and desperate for a solution.
I couldn't help but believe that there had to be a remedy out there. I was particularly intrigued by natural remedies, as I am a big supporter of Dr. Sebi and his holistic approach to health. It was during this search for answers that someone recommended Dr. Utu’s Herbal Cure. This person had previously used the treatment and promised me that I would be completely cured within four weeks. Skeptical yet hopeful, I decided to reach out and order Dr. Utu’s herbal cure.
To my amazement, after completing the treatment, I found that I was completely cured of the virus. This was a life-changing experience for me. I felt like I had regained control over my life and my health. I can confidently say that I no longer suffer from the painful outbreaks that once dominated my existence. You deserve to live a life free from the burden of this virus, If you're struggling with herpes, don't let anyone mislead you anyone can contact Dr. Utu at [email protected]

Reply
Emma Van Der Wal
25/4/2025 10:17:30

My life was nearly unbearable due to a herpes virus infection. I experienced frequent and painful outbreaks on my penis, which were incredibly difficult to manage. The blisters and sores would often appear whenever I was feeling ill, making an already tough situation even worse. I became extremely frustrated and exhausted from the cycle of pain and discomfort. I tried various medications, including Valtrex and acyclovir, hoping they would alleviate my symptoms and possibly lead to a cure. However, my doctor informed me that there was no permanent cure for the virus, which left me feeling hopeless and desperate for a solution.
I couldn't help but believe that there had to be a remedy out there. I was particularly intrigued by natural remedies, as I am a big supporter of Dr. Sebi and his holistic approach to health. It was during this search for answers that someone recommended Dr. Utu’s Herbal Cure. This person had previously used the treatment and promised me that I would be completely cured within four weeks. Skeptical yet hopeful, I decided to reach out and order Dr. Utu’s herbal cure.
To my amazement, after completing the treatment, I found that I was completely cured of the virus. This was a life-changing experience for me. I felt like I had regained control over my life and my health. I can confidently say that I no longer suffer from the painful outbreaks that once dominated my existence. You deserve to live a life free from the burden of this virus, If you're struggling with herpes, don't let anyone mislead you anyone can contact Dr. Utu at [email protected]

Reply
Athony Isak
21/6/2025 11:39:30

My heart is so filled with joy. If you are suffering from Erectile dysfunction or any other disease you can contact Dr. Moses Buba on this [email protected] or His website : https://www.facebook.com/profile.php?id=61559577240930 . For more information from me reach me via WhatsApp : +44 7375 301397

Reply



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