My name is Jayne Hyde I'm 34 years old.
When I was 25 my vulva started to itch, I didn't think much of it. At the time I worked in a teenage girls home and I had to take one of them to the sexual health clinic. I knew I had to get this itch seen to and when this timid teenager had to go, I thought if she could do it then so could I.
I booked an appointment and took a friend with me, when the sexual health doctor looked she said I had a wart and prescribed me some cream to get rid of it and told me to come back in a week.
I went back and the wart had gone but she could see something else and then informed me it could be vulval cancer, but as it takes a long time for this to develop I could be lucky and it might be only VIN.
I had to go to my GP to make a referral for me to the hospital. Which obviously I did.
My appointment came and I went, there was a male doctor and a female nurse. I was told to strip off my bottoms and get in the chair. I was terrified, he took a look at my bits and said that I had a leison 2cmx3cm and that it needed to be removed. Next thing he told me to cough and I asked why, he said cough, so I did and then he stuck a needle in me with local anaesthetic. Needless to say I swore.
He then cut out the area, stitched me up and said they would call with the results and sent me on my way.
I got a call a few weeks later to say it was VIN 2 but I needed more surgery as they didn't get clear margins. I asked the nurse if I could have it under general anaesthetic and she said it should'nt be a problem. My date came through and I went and did the same routine. Once in the chair I said that I had asked for it to be done under general anaesthetic and his response was that he was not prepared to do it under general anaesthetic as he didn't need to remove much, so unless I was going to have a nervous breakdown it would be done now under local anaesthetic. Well he said cough and I cried my eyes out so he backed off and agreed to rebook for general anaesthetic.
I went to have the rest of what I needed to be removed, removed and they called me to say that between the 2 surgeries it had gone from VIN 2 to cancer but that had got clear margins this time so no need to worry.
They informed me I would have 6 monthly check ups to begin with then it would go to yearly. All was great for a year and a half then it came back. My consultant had changed and I had a really nice lady. She said she needed to do a biopsy but gave me numbing cream to use before the procedure. I was still terrified when I went back in but held it together and she managed to do it with local anaesthetic.
Results came in, it was back but as I was only 28 and it had come back quite quickly they were going to transfer me to another hospital where they had specialists in this area.
Whilst waiting for my appointment I became anxious as I knew from a couple of years before it turned to cancer within a month or so. When I called up to ask what was happening as I hasn't heard anything for a month they said it would be a while as I needed to be discussed in the monthly MTD meeting which would be next week. I was informed not to put my life on hold waiting for the appointment as it may take a while and as it's not a fast progressing cancer they weren't concerned. During this time I had lost my job to having a breakdown and lost where I was living but hey.
Finally my appointment came through and I was prescribed Aldara cream to use and to go back in three months. Luckily the cream worked with minimal side effects and I was told that the VIN had gone. They wanted to see me again in 6 months.
6 months came and no return, they were happy to discharge me back to my local hospital with 6 monthly check ups untill I was clear for 10 years. Since then I have had 2 infected cyst's and one biopsy, I also had LS which they gave me steroid cream for.
At the moment all is looking good but I still get soreness and itching now and again but I know I am being well looked after.
Write something about yourself. No need to be fancy, just an overview.